Here’s How It Is

Here’s how it is: When I think about this blog endeavor, I think about posting something new and awesome—or at least entertaining—for you to read every Friday. Most of the time, I do that. So yay!

Okay *I* think it’s awesome. Your mileage may vary.

I want to keep posting every Friday, but this particular bit of writing has slipped down my list of priorities.

Since December of last year my family has been going through a really difficult challenge, and I’ll be blunt about it, then toddle along. My husband was diagnosed with ALS, or amyotrophic lateral sclerosis. There’s no cure. Average life expectancy is 2–4 years, but he appears to be have drawn the short straw,  and things are moving along pretty quickly.

He’s always been an avid and active outdoorsman. This thing is tough on him. Still, he maintains a pretty positive outlook, and he’s managed to keep his awesome sense of humor.

My kids made it possible for us to take a vacation in Florida with them at the beginning of this month. They are amazing. Don’t let them tell you otherwise. They helped at the airport, on the plane, with transportation, food, and paying for stuff. They treated us like royalty. I get sniffly thinking about it.

It was over too soon, and back to the fun-and-games of collecting (more) proper paperwork, combat with internet demons, dealing with insurance, disability, the trick questions served up by myssa-dot-gov. Because this situation isn’t hard enough, right?

After a day in which all e-mail except e-mail from my husband’s employer and the neurological clinic landed in my box with gleeful abandon, I think (tentatively) that things might be progressing. Hopefully. I’m not holding my breath.

So expect random updates here on my blog. I have a book I’m (trying to be) editing, and I’d much rather do that! And there’s a new Crow plot just begging for my attenton. Lemme at it! In the meantime, I absolutely love hearing from you. Shoot me an email, track me down on Facebook, or join my extremely rare newsletter. I read—and answer—all my emails!

Leave a Reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.